Tourette Syndrome Awareness Week 4-10 May 2020

Pandemic panic causes strife for those living with Tourette Syndrome

  • Australians living with Tourette Syndrome experiencing exacerbated symptoms in self-isolation
  • Around 85% of patients with Tourette Syndrome experience concurrent conditions such as OCD, ADHD, anxiety or depression
  • Tourette Syndrome Association of Australia (TSAA) is urging the public to be understanding and is offering support and advice for children and families in the form of a Pandemic Panic Pack

Download resources and latest research paper on COVID-19 and TS:

Coronavirus Explainer is also available in multiple languages here

 

 


TSAA Rebrand Project

From May this year you may notice we are looking a little different — TSAA is rolling out its new branding. We are very thankful to the design students at Torrens University Australia for working with TSAA as a live industry brief project.

As awareness week commences 4-10 May 2020, the new designs are being rolled out across our various media platforms. TSAA has used the same logo since 1989 and felt it was time for change for good — representation of movement was key to the brief with the final logo design landing beautifully with the simple yet effective ‘action’ marks that represent both motor and phonic movement — the two criteria required for a diagnosis of Tourette Syndrome.

TSAA would like to thank the 6 students involved and their Facilitator at Torrens University Australia for their commitment to TSAA.

BRAND VALUES & LOGO: EMPATHY, INCLUSIVITY, ACCEPTANCE, EDUCATION

TSAA’s main goal is to improve the quality of life of those affected by Tourette Syndrome. We used this key message and core values (above) as the direction and voice of TSAA’s brand. Creating a versatile and inclusive branding experience.

This logo has been designed to replicate movement and speech, representing the tics associated with TS and as a voice for those effected by the condition.

The typographic logo voices professionalism and maintains the integrity of the TSAA brand; keeping the focus on the core values.

Credit goes to: Robbi Ortloff-Hope, Chelsea-Rose Hoppo, Nora Haynes, Stephen Bryce, Harrison Tomlian and Cherise Evans, and also to their facilitator James Calvert.


2020 TSAA National Virtual Conference
20th June 2020

Tickets on sale NOW!

Full details and to book online see below:

 

2020 TSAA Camp Bookings Open

Please note the NSW and South Australia camps were postponed until October due to COVID-19 restrictions. The TAS, VIC and WA camps will open for bookings from late June 2020 allowing time to assess government restrictions for later in the year. Please save the dates for now.

NSW Camp October 2–4 (2020) (Bookings open)

South Australia Camp October 16-18 (2020) (Bookings open)

Northern Territory Camp August 28–30 (2020) (Bookings open)

Queensland Australia Camp September 25–27 (2020) (Bookings open)

Watch this space for the remainder of our camp program as the year unfolds. All 7 Camp dates can be viewed below.


TSAA Exclusive Screening of Motherness Brooklyn

Tickets are limited. Please book by 17 February 2020.

Sydney: Thursday 20th February 2pm

Melbourne: Thursday 20 February 1pm

Bookings can be made here.


TSAA featured on 'The Project' Channel Ten, Sunday 13 & again 17 October!

Off the back of the enormous response The Project are assisting TSAA in fundraising for the national camp program with the hope of making it free for all attendees next year. 

Donate

Donate to our Camp Program at MyCause

In late September, The Project TV show attended our QLD camp and got to meet some of the amazing kids and parents that belong to the TSAA community. After the story went to air producers were inundated with messages of support and offers of assistance for the families they profiled.

Watch the story here:

https://10daily.com.au/shows/theproject/exclusive/v191013gzilt/meet-the-incredible-aussie-family-living-with-tourettes-20191013

Tourette Syndrome (TS) is a neuro developmental disorder characterised by repetitive involuntary movements (motor tics) and sounds (vocal or phonic tics). The condition affects 1 in 100 Australian kids and with no cure there is little respite out there for children and their families.

Tourette's Camp was established in 2013 by Tourette Syndrome Association of Australia (TSAA) and offers children and their families a chance to meet people like them, feel comfortable to be themselves and provide an enriched weekend of activities and fun.

Cost per national program is *$120,000 per annum:
$276 per attendee
$1100 for a family of four
$30,000 each year to cover camp attendee's expenses (nationally)
$60,000 each year to cover both camp attendee's and TSAA subsidised costs and expenses (nationally)

Any amount is welcome and will help enormously!

*TSAA would like to acknowledge and thank the Federal Health Department, and Hon Greg Hunt MP Minister for Health for funding the remaining 50% of costs for our National Camp Program from 2018-2022.

TSAA was established in 1989 and is run by volunteers — on behalf of our community we thank you for your heartfelt support to both our story and our camp program.


National Tourette Syndrome Awareness Week 6–12 May 2019

Click the tile below to view TSAA's TAC'TICS Program

View to hear the story of TAC'TICS:





Employable Me, series 2, premieres on Tuesday 9 April at 8.30pm on ABC & ABC iview

The award-winning and critically acclaimed documentary series Employable Me returns on Tuesday 9 April at 8.30pm, ABC & ABC iview, and follows the stories of nine more people with disabilities as they battle to find work. As well as neurological conditions such as autism spectrum disorder and Tourette Syndrome, this second series features people with epilepsy, cerebral palsy, dwarfism and Down Syndrome as they search for meaningful employment..

You can visit the Employable Me website here.


Announcement of National Camp Program Funding 2018 & 2019

TSAA is pleased to announce receipt of funding for our 2018 and 2019 national camp program from the Hon Greg Hunt Minister for Health. This is the first federal funding TSAA has received so is very momentous. Thank you to Health Minister Greg Hunt MP, Chris Crewther MP member for Dunkley and all our supporters through the Parliamentary Friendship Group for Tourette Syndrome.

You can watch an announcement of the video here.


Tourettes camp on the ABC 7.30 Report

View the ABC 7:30 report on TSAA's 2018 Camp program here.


National Tourette Syndrome Awareness Week 6-12 May 2018

Visit our campaign page here:

Logo

Breaking News! Aja on The Voice Channel Nine

Season 7 episode 7:

https://www.9now.com.au/the-voice/season-7/episode-7

View Aja's Bio & Audition with surprise guest Adam Ladell:

https://www.9now.com.au/the-voice/season-7/clip-cjgetxq77005a0hlncfyfu37z/ac8cb1dc-d042-48d1-bc3a-5187eb36bd9a

Daily Mail Article: 

http://www.dailymail.co.uk/tvshowbiz/article-5655581/Delta-Goodrem-hugs-Aja-Elshaikh-Voice.html

Welcome to the Tourette Syndrome Association
of Australia Inc.

Tourette Syndrome, (TS), is a neurological disorder characterised by involuntary, irresistible body movements and vocalizations. It is complex and individual in its effect. See What is Tourette Syndrome? for a more detailed description.

People with TS seek understanding and acceptance. This website is designed to educate and inform those wishing to know more about this complex disorder.


An Introduction to life with Tourettes

The above video was created in 2008 by TSAA for our awareness campaign. As TS is 3 to 4 times more common in boys than girls and usually diagnosed around age 8 or 9, we focused on an 8 year old boy to tell the story. We chose to portray a mild to 'average' case to counter balance the more severe cases normally shown in the media. TS is a spectrum disorder making it important to represent the full range of cases. TS symptoms vary from mere aggravation to severe debilitation.

TS was first described in 1825 by French physician Itard in relation to a French noble woman Marquise de Dampierre, who exhibited strange body movements and peculiar vocalisations and obscene remarks from the age of seven.

In 1885 George Gilles de la Tourette began research into Tourette Syndrome being the first to connect multiple, complex and varied symptoms forming a syndrome. Dr Tourette named the syndrome 'Maladie des Tics' which was later named in recognition of his discovery, and called 'Gilles de la Tourette' — so we have known about it for a long time, however even today it still remains misunderstood by many.

Appropriate medical care can help control symptoms, while understanding and acceptance can accomplish even more.

Jean Marc Gaspard Itard

Jean Marc Gaspard Itard

George Gilles de la Tourette

George Gilles de la Tourette